We have a slightly different MS Reporters episode for you today: a call to action ⚡️ MS Reporter Dom catches up with Dr Richard Nicholas, Clinical Lead of the UK MS Register 📄 Richard updates us on the latest information about the Register: how this data initiative can give us a more accurate understanding of COVID-19 outcomes among MS patients; who should be completing the Register (answer - everyone with MS); and some very positive insights on MSer COVID-19 outcomes based on the UK Register data so far. Please do sign up to the UK MS Register if you are eligible to do so. The survey is very easy to complete, and there is an urgent need to broaden the evidence base on people with MS during this pandemic. Beat the fear with facts. If you’re UK-based and living with MS, please add your data to the UK MS Register now 👉
Further action:
If you live in Germany, France, Australia, New Zealand, Sweden (and many other places) the MS International Federation has a growing list of global COVID-19 and MS data initiatives, with new studies coming online all the time. Check out the list and sign up to these MS Registers in your country here 👉
The MS International Federation and MS Data Alliance have established COVID-19 & MS: Global Data Sharing Initiative. Please share widely 🙂
More COVID-19 & MS reading:
🔹 MS International Federation - Global advice on COVID-19 for people with MS 👉
🔹 Have MS and live in the UK? Join the UK MS Register Study now and help provide a more accurate picture for research - we need you 👉
🔹 The MS Selfie microsite hosts Q&As specifically for people with MS. Add your question here 👉
🔹 MS Reporter Dominic’s blog on Shift.ms - An “MSers guide” to share the facts and dispel myth and worry here 👉
🔹 MS Society - Statement from MS Society medical advisors giving helpful, practical advice on COVID-19 Coronavirus, kept under continual review here 👉
🔹 MS Trust - Great advice for MSers on what the virus is, risk and prevention here 👉
🔹 NHS website - for clear information on symptoms, transmission and what to do if you think you might have Coronavirus here 👉
🔹 Guidance from the Association of British Neurologists on the use of DMTs during Coronavirus epidemic (info for healthcare professionals and MSers) here 👉
Do you still have queries about Coronavirus and MS? Please share your thoughts with us in the comment section below ⬇️
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What’s been discussed in this video may change in the coming weeks. This is a rapidly evolving situation, but at Shift.ms we’re doing all we can to provide the most accurate, current information and advice on coronavirus from trusted experts. This interview was accurate as of time of recording (01/04/20). We’ll keep all our public information under review. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your healthcare professional team with any questions you may have regarding your treatment.
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